Sunday, September 20, 2015

Yep, she's got a brain tumor, too.

Brian sent along this piece from the Washington Post:  "I have a malignant brain tumor.  But it's not really on my mind."  I got the piece this morning, and I didn't read it until just now.  I wasn't consciously rejecting the piece, but I think I was gently walking around that email so that I didn't have to brush against it.  It can be shitty to connect to someone who's talking about a brain tumor.  In some cases I'd rather not do it at all.  Tonight Brian asked if I'd read it, so at that point I did.

The author Whitney Archer feels so similar in certain spots, her experiences matching mine.  For instance, she ends the essay by talking about the night before an MRI and crying.  Another:  she doesn't imagine the future.  It's not a conscious decision.  Instead, it's just what your life shifts into.  She writes,

But being a cancer patient means inevitable loss. I’m more impatient than ever. My son mentioned me being a grandma, and I realized that I don’t picture myself growing old anymore. My timeline has inexorably shrunk to the next MRI and, if I’m being optimistic, next year. Despite my present health, the future holds both hope and terror.

Three generations!  Kelly, Alison, and Maybelle.
Hope and terror.  Yep.  Loss.  Impatience.  I know I've talked about this, somewhere--about the way friends worry about wrinkles, while I embrace those wrinkles because they mean that I'm still alive.  I'm so grateful to be in my 40's, because I was 37 when this started. I'm getting to see my body move to the next part of my life.  More importantly, Maybelle was 18 months old when this started, and now she's 7.  Gratitude.  Impatience.  Let time move along so that I can be with Maybelle, so that I won't have to drag and worry.

More connecting with Archer:  she writes about the ways people speak about cancer.  She refers to the use of "'battling' it" and says, "the vocabulary persists: Cancer is an invasion; patients wage war against an army of rapidly multiplying cells."  She said her metaphor is dual citizenship.  Like she does, I know that the full "We will kill this battle!" isn't helpful.  My imagery this year has worked with a list Catherine gave me:

May I be safe.
May I be happy.
May I be healthy.
May I be at peace.

I run that set of images in my mind again and again.

As I read the article, and as I wrote this page, I kept wondering how Archer and I are different?  This is a ridiculous comparison I'm making, but I can't stop myself.  She and I are different because I'm in a much more serious world of the brain tumor.  She's not on IV infusion.  I have to be in the hospital every other week.  Big lump under my skin.  Never allowed to have Advil ever again.  Etc.  My brain tumor is more serious than it has been.  More and more.  And I guess I want recognition of my suffering when I read Archer's essay.

But that's an effort for clarity, for status, for defining myself by framing myself against her.  Offensive and not interesting, either.  As I said at the beginning here, Archer and I have many, many things in common.  I'm going to imagine her as a friend.  Hello, Archer!  I hope you'll be getting to bed soon.

3 comments:

  1. I am picturing you safe and healthy too. And intensely wishing for "less and less". Sending you all my love.

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  2. I send you metta every single day, Alison. I read that essay a while back, and your reading of it, your writing of it, is perfect and beautiful and powerful.

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  3. Alison, your mantra evokes Loving kindness meditation:
    May I be safe.
    May I be happy.
    May I be healthy.
    May I be at peace.

    Sharon Salzburg's works on Loving Kindness meditation embrace this mantra and take it further; check out her work if you have the time or inclination. Sending you wishes for happiness, health, peace and safety! Alison Smith

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