I'm surrounded by people I love, and they're sending some good vibes my way. I don't rejection those vibes. But despite the vibes, my mind sometimes feels like is changing. It's become who I am: I'm a person who has a brain tumor, and whose professional is shifting.
I do love feelings like that, the ways that I'm surrounded by the people I love. But my love is...a paradox. I know I've been paradoxical, and I'm sure I'll say it again. I feel so grateful, and also sad. Go back and read my post, what I sent to my team. These readers send back a line of beautiful celebrations, because it's a big deal. Having the Duke professionals share that the tumor isn't growing--this is great. And I felt that relief! But note that there are no exclamation points. What does "All is well" means--that's calm. "I'm very grateful." And I was--I am. At that moment, though, I wasn't excited. I was grateful.
Paradox, right? I'm grateful. Feeling myself reaching out, but not with big hugs and laughter. Grateful. I'm getting both, but that means that I think we're in the middle. Yes, this is great. And yes, we don't know what to expect.
This week I had my Charleston chemo. I've felt so tired that I've slept for two solid days. This is normal. The thing that I hated was that while I slept, I had nothing but nightmares.
But here I am. Loving my daughter. Taking my time this morning to finish my blog. Awake right now, and it might allow me to do the things I'm doing at school.
I have nothing else to say! But I wanted to throw things out there, since I haven't shared with you all for a while.
Here's the good news--and it's truly good: we went to Duke last Thursday, and my three experts said that my brain tumor isn't growing. Gordana said that since I'm six months into this round of chemotherapy, a lack of tumor growth is a sign that it's going to keep working. We don't know, but it's a good position. Safe.
When I got out of the meeting, I wrote to all my family and close friends:
I just learned that my tumor isn't growing. "All is well," said Sharon, one of my favorite medical people. I'm very grateful.
xo,I got the perfect, brief responses:
Alison
"Woot!!!" "Yay!!!" "Excellent news! I love you!" "I'm going to a lot to write about." "I'll every moment." "Such wonderful news.""Savor every moment." Trey and Aaron emailed. My dad and my mom shared such of what they'll to share their love.
I have no idea how Trey found this, but it seems like it's celebrating. |
Paradox, right? I'm grateful. Feeling myself reaching out, but not with big hugs and laughter. Grateful. I'm getting both, but that means that I think we're in the middle. Yes, this is great. And yes, we don't know what to expect.
This week I had my Charleston chemo. I've felt so tired that I've slept for two solid days. This is normal. The thing that I hated was that while I slept, I had nothing but nightmares.
But here I am. Loving my daughter. Taking my time this morning to finish my blog. Awake right now, and it might allow me to do the things I'm doing at school.
I have nothing else to say! But I wanted to throw things out there, since I haven't shared with you all for a while.