tag:blogger.com,1999:blog-8217750984500164269.post1402761064256634541..comments2024-03-02T03:16:49.548-05:00Comments on Every little thing: Alison at the National Society for Genetic CounselorsAlison Piepmeierhttp://www.blogger.com/profile/17972854288403934814noreply@blogger.comBlogger13125tag:blogger.com,1999:blog-8217750984500164269.post-78827024764441305932013-10-28T06:36:33.037-04:002013-10-28T06:36:33.037-04:00Anne, I should have mentioned you in particular, b...Anne, I should have mentioned you in particular, because your research meshes with my own so beautifully--it's just that you're quantitative and I'm..."qualitative" seems too strict a word. I'm sort of narrative musing. I'd actually love it if you sent your paper from NSGC to me!Alison Piepmeierhttps://www.blogger.com/profile/17972854288403934814noreply@blogger.comtag:blogger.com,1999:blog-8217750984500164269.post-37078995917987444972013-10-28T06:34:31.456-04:002013-10-28T06:34:31.456-04:00LOVE to know the real way to identify Anaheim.LOVE to know the real way to identify Anaheim.Alison Piepmeierhttps://www.blogger.com/profile/17972854288403934814noreply@blogger.comtag:blogger.com,1999:blog-8217750984500164269.post-597134052676363862013-10-28T06:34:06.152-04:002013-10-28T06:34:06.152-04:00Thank you, Elizabeth! That is HIGH praise!Thank you, Elizabeth! That is HIGH praise!Alison Piepmeierhttps://www.blogger.com/profile/17972854288403934814noreply@blogger.comtag:blogger.com,1999:blog-8217750984500164269.post-73582581627110121172013-10-27T23:01:35.091-04:002013-10-27T23:01:35.091-04:00Hi Alison,
It was great to meet you. Katie told ...Hi Alison,<br /><br />It was great to meet you. Katie told me about your blog and I finally came over to check it out. I love it. I was honored to be at the table with you and all the other women presenting at Katie's pre-conference sympsosium. Keep bringing down the patriarchy, and let me know what you think of Sick: The Life and Death of Bob Flanagan, Supermasochist.Anne Madeohttps://www.rottentomatoes.com/m/sick_the_life_and_death_of_bob_flanagan_supermasochist/noreply@blogger.comtag:blogger.com,1999:blog-8217750984500164269.post-90000569287941691162013-10-12T09:13:27.050-04:002013-10-12T09:13:27.050-04:00Fascinating stuff - sometimes I think I dodged a b...Fascinating stuff - sometimes I think I dodged a blow when our geneticist reached Matt first, though she reportedly didn't say anything asinine. By then, however, I'd already met the cardio who was overwhelmingly positive. Freak bit of luck, there. <br />I love that you're out there, shaping the conversation. <br />[Also, Anaheim is aka 'The Armpit of LA,' not so much it's butt :) <br />And I know a bunch (well, 2) female drug reps, though one sells little blue pills, I wonder what it is about this particular branch of drugs that ended up w/all the men?]krlrhttps://www.blogger.com/profile/14392064691347464660noreply@blogger.comtag:blogger.com,1999:blog-8217750984500164269.post-25263708183680871882013-10-11T18:49:32.312-04:002013-10-11T18:49:32.312-04:00Totally. I want to change the world for her, but I...Totally. I want to change the world for her, but I wouldn't change her for the world.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8217750984500164269.post-27364223756275808702013-10-10T23:31:24.819-04:002013-10-10T23:31:24.819-04:00I wish that you could print that whole paragraph o...I wish that you could print that whole paragraph of yours out on some sort of laminated card. I would carry it around and hand it out to people -- professionals and those on the street, alike. Elizabethhttps://www.blogger.com/profile/03313726816776097840noreply@blogger.comtag:blogger.com,1999:blog-8217750984500164269.post-53133717361524926502013-10-10T22:08:17.539-04:002013-10-10T22:08:17.539-04:00Hurray for Claire! Isn't it great to have kid...Hurray for Claire! Isn't it great to have kids we love who expand our perspective on the world?Alison Piepmeierhttps://www.blogger.com/profile/17972854288403934814noreply@blogger.comtag:blogger.com,1999:blog-8217750984500164269.post-58781216944726094792013-10-10T22:07:42.126-04:002013-10-10T22:07:42.126-04:00That's wonderful! Congratulations! I can con...That's wonderful! Congratulations! I can connect you to some great Facebook groups if your'e interested. Feel free to email me.Alison Piepmeierhttps://www.blogger.com/profile/17972854288403934814noreply@blogger.comtag:blogger.com,1999:blog-8217750984500164269.post-64586057863408957302013-10-10T22:07:10.178-04:002013-10-10T22:07:10.178-04:00Virtually all genetic counselors are women. Virtu...Virtually all genetic counselors are women. Virtually all drug reps are men. More about this tomorrow.Alison Piepmeierhttps://www.blogger.com/profile/17972854288403934814noreply@blogger.comtag:blogger.com,1999:blog-8217750984500164269.post-9625945134703657702013-10-10T11:01:03.705-04:002013-10-10T11:01:03.705-04:00I am SO thankful that our genetic counselors were ...I am SO thankful that our genetic counselors were compassionate and kind when we got our in-utero spina bifida dx. I'm so very interested in your work on this topic. We weren't even offered abortion, because at that point, with twins, it really just wasn't possible. But I know that some 60+% of people who receive an in utero SB dx choose to terminate the pregnancy. I am wildly pro-choice, but am totally with you in that we need to reframe disability to help people make the most informed choices they can. I often tell myself that I wish I could see Claire now when I was in that ultrasound room then. Seeing how full, complete, whole, wonderful, human she is would have surely alleviated my fears. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8217750984500164269.post-77570571823328910732013-10-10T09:55:52.201-04:002013-10-10T09:55:52.201-04:00I am currently 23 weeks along with my mo/di twin b...I am currently 23 weeks along with my mo/di twin boys who were diagnosed with Ds at 14 weeks. Sadly I have heard all four comments quite frequently from my doctors. However our Genetic Counselor was very neutral. My husband and I decided to continue our pregnancy...we CAN NOT WAIT to meet our beautiful little boys!! :-)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8217750984500164269.post-63815194879856323482013-10-10T09:31:28.546-04:002013-10-10T09:31:28.546-04:00What an amazing looking group! (and ok, are there...What an amazing looking group! (and ok, are there men who do genetic counseling??). It is great to hear the positive feedback that you are getting -- making change in the world!clairenoreply@blogger.com